Date of Completion

2015

Document Type

Honors College Thesis

Department

Social Work

Thesis Type

Honors College

First Advisor

Holly-Lynn Busier

Keywords

Pediatric Palliative Care, Life-Limiting Illnesses, Social Work, Portraiture, Medical Social Work

Abstract

My research was an attempt to understand current structures of care for children with life-limiting illness through the experiences and perceptions of clinicians and family members. My hope was to better understand the perspectives of these individuals in order to identify the strengths and challenges of caring for these children. The qualitative research methodology employed was Social Science Portraiture (Lawrence-Lightfoot, 1997), a methodology that seeks to elicit individual stories for themes, voice, relationship, and context. Cross-case themes were also explored. Three interviews were conducted and the participant pool consisted of three parents, one sibling and two clinicians. Interviews were transcribed, coded and used to create a “portrait” of each interview in order to determine themes relevant to caring for children with life-limiting illnesses. Themes of human capacity and building relationships were present across all three portraits. My project adds to the small but growing field of research about children with life-limiting illnesses and their families. The implications of this study will hopefully inform future researchers and medical professionals as they seek to improve the quality of care offered to this population.

Creative Commons License

Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 License
This work is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 License.

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