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Huntington’s Disease: Assessing The Needs of Patients and Caregivers in Vermont
Balla, Agnes Baran, Caitlin Bodden, Larry Foley, Joseph Gardner, Kelly Rabideau, Laura Taicher, Christopher Ware, Benjamin Boyd, Jim Martinez, Linda
Balla, Agnes
Baran, Caitlin
Bodden, Larry
Foley, Joseph
Gardner, Kelly
Rabideau, Laura
Taicher, Christopher
Ware, Benjamin
Boyd, Jim
Martinez, Linda
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Abstract
Introduction: Huntington’s disease (HD) is an inherited neurological disorder that causes a progressive decline in motor, cognitive and psychiatric function. • HD affects 30,000 people in the USA. In Vermont it is estimated that 69 individuals have HD and 420 people are at risk for developing the disease. • Crescent Manor Care Centers is currently the only long term care facility in Vermont that houses Huntington’s patients. Patients receive care specific to HD including PT, OT, Speech Therapy and community activities. Currently, 13 of 40 beds are occupied. • There is one HD support group in the state located in South Burlington which meets once a month. Due to the low population of HD patients in the state, there is no single state government agency responsible for managing the care of HD patients.
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Date
2012-01-24